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PKU Stories
Ellen Davie
After being diagnosed later in life, Ellen shares her story of adjusting to life with PKU.
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Carmen Esparon
Carmen went off diet as a young teenager and has since overcome many challenges with a newfound positive approach to her PKU management.
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Mazzone and Contera Families
The Mazzone and Contera families share their story of life with PKU.
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Kevin Alexander: Part One
Kevin Alexander is an adult living with PKU. He is also a professional videographer, and for the last few years has been traveling the world and producing videos about PKU.
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Kevin Alexander: Part Two
Kevin Alexander shares more of his experiences in his advocacy for PKU and newborn screening.
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Nicholas Maynes
Nick shares his story about living with PKU and his trip to America as a representative basketball player.
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