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PKU Stories

Katy Drewitt

Katy shares her inspiring PKU story.

Ellen Davie

After being diagnosed later in life, Ellen shares her story of adjusting to life with PKU.

Carmen Esparon

Carmen went off diet as a young teenager and has since overcome many challenges with a newfound positive approach to her PKU management.

Mazzone and Contera Families

The Mazzone and Contera families share their story of life with PKU.

Kevin Alexander: Part One

Kevin Alexander is an adult living with PKU. He is also a professional videographer, and for the last few years has been traveling the world and producing videos about PKU.

Kevin Alexander: Part Two

Kevin Alexander shares more of his experiences in his advocacy for PKU and newborn screening.

Nicholas Maynes

Nick shares his story about living with PKU and his trip to America as a representative basketball player.

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