Welcome to PKU Connect
PKU Connect is an online resource to provide supportive information for people with PKU and their carers looking for products, recipes and information.
The products discussed on this website are Foods for Special Medical Purposes for the dietary management of PKU and must be used under medical supervision. This website is intended for people with PKU.
What do we offer?
By registering on PKU Connect, people with PKU and carers will be able to access content, such as recipes, cooking videos and tips. Patients can also be part of a safe, private and exclusive online community where they can share thoughts and ask questions.
Where appropriate, visitors to the site will be pointed towards their dietitian/healthcare professional for more information.
Whether a parent who’s just found out about their newborn’s diagnosis or a long-term patient, at PKU Connect there’s something for everyone.
Who is behind PKU Connect?
Nutricia, part of the Danone group, specialises in the delivery of advanced medical nutrition for the dietary management of disease and disease-related malnutrition. We supply high quality feeds, systems and support services to patients and healthcare professionals.
At Nutricia, we have developed a broad and unique portfolio of products for many classes of patients, and support the widest variety of inborn errors of metabolism. We seek to provide solutions and services wherever nutritional intervention can be shown to improve clinical outcomes. In partnership with healthcare professionals and caregivers, we work to make a real difference in people’s lives, by making those of our patients and their families a little easier.
Information for Healthcare ProfessionalsPKU Connect provides information on Nutricia’s range of PKU supplements and low protein foods. For full product information and nutritional fact sheets please see our Products section.
Nutricia TEMPLE Modules
We know that learning about a Metabolic Condition can be confusing, as there is a lot to take in and understand. Nutricia created TEMPLE (which stands for Tools Enabling Metabolic Parents’ LEarning) to provide support and help families of newly diagnosed children to better understand the condition. TEMPLE provides a way for healthcare professionals to explain the condition in a clear and consistent way, covering topics such as diagnosis, genetics and dietary management.
TEMPLE has been developed by the Nutricia UK team, in collaboration with the British Inherited Metabolic Disease Group (BIMDG) and adapted for use in Australia and New Zealand by the Australasian Society for Inborn Errors of Metabolism (ASIEM).
Download the TEMPLE Modules here: