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New Parents

My Baby’s PKU

Finding out your baby has been diagnosed with PKU is likely to be an emotional and overwhelming time for parents. The important thing to remember is that children with PKU treated appropriately from early infancy are able to live normal, healthy lives.

Managing your Baby’s PKU

If your baby is diagnosed with PKU your dietitian will work closely with you to introduce a Phenylalanine (Phe)-free formula for infants, alongside breast milk or standard infant formula.

Monitoring Phe Levels

Monitoring your baby’s blood Phe levels is an important part of managing PKU. Keeping blood Phe levels within the target range helps with normal growth and development.

PKU and First Foods

During your baby’s first few months they get all the nutrition and Phe they need from breast milk and/or infant formula and their PKU formula. From around 6 months your baby will move onto the next stage of feeding, when solid foods are introduced.

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